This website has been initiated and funded by the biopharmaceutical company, Chiesi Ltd. This website is for UK residents only.
For further information and advice on COPD, please contact your healthcare professional.

Life with COPD

Living with Chronic Obstructive Pulmonary Disease (COPD) means dealing with a condition that can change over time.

While COPD is a progressive illness, many people live full and active lives for years after diagnosis. With the right treatment, planning, and support, you can manage your symptoms and maintain your quality of life.1

Planning for the future

COPD symptoms can get worse over time, which means it’s helpful to start thinking early about what support you might need in the future. That includes both medical care and day-to-day help with things like getting around or managing flare-ups.1

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Travelling with COPD

Having COPD doesn’t mean you can’t go on holiday or visit loved ones — it just takes a bit of extra planning.2
Things to consider:2,3

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Weather

Sudden temperature changes can trigger symptoms

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Pollen

High pollen counts may affect breathing

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Air pollution

Look up air quality at your destination using resources like the World Air Quality Index

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Insurance

Make sure your insurance covers your COPD and any other conditions you have. You also need to tell the insurance company about any treatment or tests you’re due to have

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Altitude

Less oxygen at high altitudes can be difficult — check with your doctor before going

Flying with COPD

If you have COPD and are planning to fly, go to your GP for a fitness-to-fly assessment. This involves checking your breathing and oxygen levels.4

Before travelling, remember to pack all your medicine, such as inhalers, in your hand luggage. If you're using oxygen therapy, tell your travel operator and airline before you book your holiday, as you may need to get a medical form from your GP.4

If you're using long-term oxygen therapy, you'll need to make sure you have an adequate oxygen supply for your flight as well as for your time away. Airlines generally do not allow you to bring oxygen cylinders with you but may permit portable oxygen concentrator devices.4

Travel checklist for people with COPD2–6

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Talk to your GP before booking

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Make sure your rescue pack is stocked

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Pack enough medication for your whole trip

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Keep medicines and essential equipment in your hand luggage

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Check if you need vaccinations

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If you use oxygen, check airline policies and complete any forms in advance

Add a reminder to your discussion list to chat with your healthcare team about upcoming travel plans.

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Thinking about future care

COPD can gradually affect your ability to manage day-to-day tasks. Planning in advance can help make sure your wishes are respected, and that your loved ones and medical team know what matters most to you.7,8

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You might want to consider:7,8

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Can your home be adapted (e.g. moving a bed downstairs)?
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Are there local services to help with cleaning or transport?
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Would you prefer to be cared for at home or in a hospice?
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If you become seriously ill, would you want to go to hospital?
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End-of-life care and advance planning
Talking about the end of life isn’t easy — but planning ahead can give you peace of mind and help those around you feel confident they are supporting you in the right way.8
You might want to:8
Talk to your family or carer about your wishes
Consider where you’d prefer to be cared for
Discuss advance care planning with your GP or nurse
Write a will or speak to a solicitor about legal matters
Think about the kind of treatment you do or don’t want
Discuss organ donation
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Resources like Asthma + Lung UK offer helpful guidance on advance care planning. You can also make a note in your discussion list to speak with your medical team at your next appointment.
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Healthcare team could include a GP, nurse, pharmacist, physiotherapist, dietitian, occupational therapist, counsellor and stop smoking advisor.

Abbreviations:

COPD, chronic obstructive pulmonary disease; GP, general practitioner.

References:

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